The core data elements collected by SAPRIN. You are free to: Share — copy and redistribute the material in any medium or format Adapt — remix, transform, and build upon the material for any purpose, even commercially. Under the following terms: Attribution — You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use. No additional restrictions — You may not apply legal terms or technological measures that legally restrict others from doing anything the license permits. South African Population Research Infrastructure Network (SAPRIN) definition alternative term source database_cross_reference comment see also answer type formula internal ID measurement time number of cohorts question description use cases requirements value is about has target measurement of output of The core entities on which longitudinal data will be collected. Each entity has a dated start and end event Base Entities Base_Entities A place to which geo-coordinates can be assigned GECKO:0000064 Location Location GECKO:0000064 residence GECKO:0000064 Type (Location) Type_Location GECKO:0000064 residence Village or other higher level spatial grouping of locations GECKO:0000064 Area Area GECKO:0000064 residence Latitude and longitude on the WGS84 coordinate system GECKO:0000064 Coordinate Coordinate GECKO:0000064 residence A household resident at a location within the boundary of the surveillance area. A household is defined as a social group of one or more individual members. Resident household members share the same dwelling as the household, non-resident household members are individuals who do not share the same dwelling as the household, but who eat from the same pot when they are present in the household‚Äôs dwelling. GECKO:0000064 Household Household GECKO:0000064 residence A unique household identifier which the household retains irrespective of its current residence GECKO:0000064 Identifier (Household) Identifier_Household GECKO:0000064 residence Household members, where a resident is a member of a household who normally lives (i.e. intends to sleep the majority of the time) at the same dwelling as the household; and a non-resident is a member of a household who does not normally live at the same dwelling as the household but is nevertheless considered a member of the household. Individual Individual A globally unique identifier used internally to uniquely identify the individual GECKO:0000055 Identifier (Individual) Identifier_Individual GECKO:0000055 unique identifiers An identifier used on data collection instruments to uniquely identify the individual, but is removed together with other personally identifiable information when data is made available for analysis GECKO:0000055 External identifier (Individual) External_identifier_Individual GECKO:0000055 unique identifiers Family or last name GECKO:0000052 Surname Surname GECKO:0000052 survey administration An alternative surname (formerly) used by the individual, e.g. maiden name GECKO:0000052 Alternative surname Alternative_surname GECKO:0000052 survey administration The first given name of the individual GECKO:0000052 First name 1 First_name_1 GECKO:0000052 survey administration The second/alternative given name of the individual GECKO:0000052 First name 2 First_name_2 GECKO:0000052 survey administration The 13-digit South African civilian identity number GECKO:0000055 Civilian ID number Civilian_ID_number GECKO:0000055 unique identifiers The country of which the individual is a citizen GECKO:0000061 Citizenship Citizenship GECKO:0000061 ethnicity/race The country of origin of the individual (the country of which the person is/was a citizen by birth) GECKO:0000064 Nationality Nationality GECKO:0000064 residence Male (1), female(2) or unknown(0) PATO:0000047 Sex Sex PATO:0000047 biological sex The Birth event of this individual or the DeliveryEvent resulting in the birth of this individual if the individual enters surveillance through birth PATO:0000011 Birth (Individual) Birth_Individual PATO:0000011 age/birthdate The death event of this individual or the Observation at which this individual was last observed UBERON:0000105 EndEvent (Individual) EndEvent_Individual UBERON:0000105 life stage/time point The unique identifier of the mother of the individual, if the mother is enumerated in the surveillance GECKO:0000055 MotherId MotherId GECKO:0000055 unique identifiers The unique identifier of the father of the individual, if the father is enumerated in the surveillance GECKO:0000055 FatherId FatherId GECKO:0000055 unique identifiers The surname of the mother of the individual GECKO:0000052 MotherSurname MotherSurname GECKO:0000052 survey administration The first name/s of the mother GECKO:0000052 MotherFirstName MotherFirstName GECKO:0000052 survey administration The surname of the father of the individual GECKO:0000052 FatherSurname FatherSurname GECKO:0000052 survey administration The first name/s of the father GECKO:0000052 FatherFirstName FatherFirstName GECKO:0000052 survey administration Demographic events that delineate episodes of observation during longitudinal surveillance Events Events A change in location of usual residence Migration Migration Date of migration STATO:0000093 Date (Migration) Date_Migration STATO:0000093 date and time-related information Type (Migration) Type_Migration Direction Direction Origin of the migration (location) Origin Origin Destination of the migration (location) Destination Destination Individual or household Unit Unit The birth event of an individual PATO:0000011 Birth Birth PATO:0000011 age/birthdate Date of birth PATO:0000011 Date (Birth) Date_Birth PATO:0000011 age/birthdate Birth weight as obtained from the Road to Health card in grams UBERON:0000105 Birth weight Birth_weight UBERON:0000105 life stage/time point Whether the birth certificate was observed UBERON:0000105 BirthCertificate BirthCertificate UBERON:0000105 life stage/time point The date on which the birth was registered, or null if the birth hasn‚Äôt been registered yet STATO:0000093 DateRegistered DateRegistered STATO:0000093 date and time-related information The end event of a pregnancy GECKO:0000114 PregnancyOutcome PregnancyOutcome GECKO:0000114 reproduction Date of birth GECKO:0000114 Date (PregnancyOutcome) Date_PregnancyOutcome GECKO:0000114 reproduction Types i-ii is only applicable if the pregnancy end prior to the 28th week of pregnancy, types iii-v is applicable only on or after the 28th week of pregnancy GECKO:0000114 Type (PregnancyOutcome) Type_PregnancyOutcome GECKO:0000114 reproduction GECKO:0000114 Place (PregnancyOutcome) Place_PregnancyOutcome GECKO:0000114 reproduction GECKO:0000114 BirthAttendant BirthAttendant GECKO:0000114 reproduction The number of babies born alive resulting from this delivery GECKO:0000114 LiveBirths LiveBirths GECKO:0000114 reproduction The number of still born babies resulting from this delivery GECKO:0000114 Stillborn Stillborn GECKO:0000114 reproduction The death of an individual UBERON:0000105 Death Death UBERON:0000105 life stage/time point The date of the death STATO:0000093 UBERON:0000105 Date (Death) Date_Death STATO:0000093 date and time-related information UBERON:0000105 life stage/time point UBERON:0000105 Place (Death) Place_Death UBERON:0000105 life stage/time point Observed UBERON:0000105 DeathCertificate DeathCertificate UBERON:0000105 life stage/time point WHO standard verbal autopsy questionnaire items. SAPRIN will adopt the worldwide standardised World Health Organisation (WHO) Verbal Autopsy questionnaires to determine the cause of deaths reported in the surveillance population. The latest version of the WHO Verbal Autopsy Questionnaire is 2016, edited and cognitively tested to facilitate the use of publicly available analytical software for assigning the cause of death. UBERON:0000105 Verbal autopsy Verbal_autopsy UBERON:0000105 life stage/time point The initial event at enumeration of an entity. Can only be used during the base census of the demographic surveillance, or when a new area is added to the surveillance Enumeration Enumeration Date of enumeration STATO:0000093 Date (Enumeration) Date_Enumeration STATO:0000093 date and time-related information A change in household membership Membership Events Membership_Events The date of the change Date (Membership Events) Date_Membership_Events Type (Membership Events) Type_Membership_Events A change in the head of the household GECKO:0000066 Household Headship Household_Headship GECKO:0000066 family and household structure The date of the change STATO:0000093 Date (Household Headship) Date_Household_Headship STATO:0000093 date and time-related information Type (Household Headship) Type_Household_Headship A change in the union (conjugal relationship) between two individuals PATO:0001995 UnionEvent UnionEvent PATO:0001995 socio-demographic and economic characteristics The date of the event STATO:0000093 Date (UnionEvent) Date_UnionEvent STATO:0000093 date and time-related information Type (UnionEvent) Type_UnionEvent A surveillance visit at a location GECKO:0000052 Observation Observation GECKO:0000052 survey administration Visit date STATO:0000093 Date (Observation) Date_Observation STATO:0000093 date and time-related information Location where the visit took place GECKO:0000052 Location (Observation) Location_Observation GECKO:0000052 survey administration The person responsible for data collection during the visit GECKO:0000052 DataCollector DataCollector GECKO:0000052 survey administration The primary respondent at the visit GECKO:0000052 Respondent Respondent GECKO:0000052 survey administration Used to record associations longitudinally between base entities. Episodes are always started and ended through events. Episodes Episodes An episode during which an individual is resident (sleeping most of the time there) at a particular location that falls within the surveillance area. An individual can only be resident at one location at a time, i.e. residency episodes cannot overlap GECKO:0000064 Residence Residence GECKO:0000064 residence The individual identifier GECKO:0000064 Individual (Residence) Individual_Residence GECKO:0000064 residence The location identifier GECKO:0000064 Location (Residence) Location_Residence GECKO:0000064 residence The event that started the episode, can only be Enumeration, Birth, Migration (Direction: In) GECKO:0000064 StartEvent (Residence) StartEvent_Residence GECKO:0000064 residence The event that terminated the episode, can only be Death, Migration (Direction: Out) and Observation (in which the implication is that the individual is last known to be resident) GECKO:0000064 EndEvent (Residence) EndEvent_Residence GECKO:0000064 residence An episode during which a household is resident at a particular location that falls within the surveillance area. A household can only be resident at one location at a time, i.e. residency episodes cannot overlap HouseholdResidence HouseholdResidence The household identifier GECKO:0000064 Household (HouseholdResidence) Household_HouseholdResidence GECKO:0000064 residence The location identifier GECKO:0000064 Location (HouseholdResidence) Location_HouseholdResidence GECKO:0000064 residence The identifier associated with the household during this residence GECKO:0000064 External identifier (HouseholdResidence) External_identifier_HouseholdResidence GECKO:0000064 residence The event that started the episode, can only be Enumeration, Household formation, Migration (Direction: In) GECKO:0000064 StartEvent (HouseholdResidence) StartEvent_HouseholdResidence GECKO:0000064 residence The event that terminated the episode, can only be Household dissolution, Migration (Direction: Out) and Observation (in which the implication is that the household is last known to be resident) GECKO:0000064 EndEvent (HouseholdResidence) EndEvent_HouseholdResidence GECKO:0000064 residence An episode during which an individual is a member of a household. An individual must be a member of at least one household to be under surveillance. An individual can be a member of more than one household at a time (membership episodes may overlap). In the case of multiple memberships, the designated household of an individual will be the household the individual is co-resident with, ranked according to the closeness of the members relationship to the household head (self, spouse, child, grandchild, parent, sibling, other relationship) Membership Episodes Membership_Episodes The individual identifier Individual (Membership Episodes) Individual_Membership_Episodes The household identifier Household (Membership Episodes) Household_Membership_Episodes The event that started the episode, can only be Enumeration, Birth or Membership start StartEvent (Membership Episodes) StartEvent_Membership_Episodes The event that ended the episode, can only be Death, Membership end or Observation (implying that the membership is current) EndEvent (Membership Episodes) EndEvent_Membership_Episodes Household head relationships are linked to a household membership and record the relationship between the individual and the head of the associated household. If the head of household change, all current household members start a new household head relationship episode Household Head Relationship Household_Head_Relationship The household membership episode associated with this household head relationship Membership (Household Head Relationship) Membership_Household_Head_Relationship The relationship between the individual member (to whom the membership belongs) and the current household head of the household Relationship Relationship The event that started the episode. Can only be Enumeration, Birth, Membership start, or Household Headship start StartEvent (Household Head Relationship) StartEvent_Household_Head_Relationship The event that ended the episode. Can only be Death, Membership end, Household Headship end or Observation EndEvent (Household Head Relationship) EndEvent_Household_Head_Relationship The episode during which two persons are in an informal or formal conjugal relationship. For a conjugal relationship to exist the following factors should be considered: i. Shelter. Do the partners live under the same roof? ii. Sexual and personal conduct. Do the partners have sexual relations; do they maintain an attitude of fidelity to each other; do they eat their meals together? iii. Services. Do they share household responsibilities? iv. Social. Do they participate together in social activities; does their society recognise them as a couple? v. Support. Do they support each other financially? vi. Children. Do they have children together? PATO:0001995 Union Union PATO:0001995 socio-demographic and economic characteristics The individual identifier of one of the parties to the union. By convention this will be the female in a heterosexual union. PATO:0001995 Individual1 Individual1 PATO:0001995 socio-demographic and economic characteristics The individual identifier of the second party to the union. PATO:0001995 Individual2 Individual2 PATO:0001995 socio-demographic and economic characteristics The start of the union. Can only be Enumeration or Union start PATO:0001995 StartEvent (Union) StartEvent_Union PATO:0001995 socio-demographic and economic characteristics The date on which the union has been formalised as a marriage STATO:0000093 MarriageDate MarriageDate STATO:0000093 date and time-related information The end of the union. Can only be Union ‚Äì partner died, Union ‚Äì separation (if there is no marriage date), Union ‚Äì divorce (if there is a marriage date), or Observation if it a current union PATO:0001995 EndEvent (Union) EndEvent_Union PATO:0001995 socio-demographic and economic characteristics The period of being pregnant. Also used to record maternity histories retrospectively GECKO:0000114 Pregnancy Pregnancy GECKO:0000114 reproduction The individual identifier of the woman who experienced the pregnancy GECKO:0000114 Woman Woman GECKO:0000114 reproduction The number of antenatal care visits during this pregnancy GECKO:0000114 ANCVisits ANCVisits GECKO:0000114 reproduction Duration in weeks of the pregnancy GECKO:0000114 Duration Duration GECKO:0000114 reproduction A delivery event or Observation if the pregnancy is still current at the time of observation GECKO:0000114 Outcome Outcome GECKO:0000114 reproduction The period during which an individual receives a government social support grant PATO:0001995 Social support Social_support PATO:0001995 socio-demographic and economic characteristics The individual identifier of the person holding the grant PATO:0001995 Grantholder Grantholder PATO:0001995 socio-demographic and economic characteristics The individual identifier of the intended beneficiary of the grant. This may be the same as the identifier of the grant holder in the case where the holder is the beneficiary, e.g. old age pension, or different as in the case of care dependency grants, where the grant holder receives the grant on behalf of someone else, e.g. a child PATO:0001995 Beneficiary Beneficiary PATO:0001995 socio-demographic and economic characteristics The type of grant PATO:0001995 Type (Social support) Type_Social_support PATO:0001995 socio-demographic and economic characteristics The start date of the social support STATO:0000093 StartDate StartDate STATO:0000093 date and time-related information The end date of the social support STATO:0000093 EndDate EndDate STATO:0000093 date and time-related information Information collected at a particular observation, valid only at the time of the observation. State may be imputed between consecutive status observations but is not known to be valid. This is in contrast with episode where the assertion is that the state represented by the episode is valid for the duration of the episode. StatusObservation StatusObservation A set of data elements collected about an individual either during a face-to-face visit or telephonic interview with the individual or from a proxy informant Individual StatusObservation Individual_StatusObservation The unique individual identifier of the subject of the status observation Individual (Individual StatusObservation) Individual_Individual_StatusObservation The observation at which the status observation was made Observation (Individual StatusObservation) Observation_Individual_StatusObservation Physical presence in the dwelling, recorded as the number of months since the previous observation visit GECKO:0000064 ResidentStatus ResidentStatus GECKO:0000064 residence MotherStatus MotherStatus FatherStatus FatherStatus Grade 1 ‚Äì 12 PATO:0001995 HighestSchoolLevelCompleted HighestSchoolLevelCompleted PATO:0001995 socio-demographic and economic characteristics PATO:0001995 HighestNonSchoolEducation HighestNonSchoolEducation PATO:0001995 socio-demographic and economic characteristics If the individual is currently attending an educational institution, at what level: PATO:0001995 CurrentEducation CurrentEducation PATO:0001995 socio-demographic and economic characteristics PATO:0001995 Currently employed Currently_employed PATO:0001995 socio-demographic and economic characteristics Type/reason for unemployment PATO:0001995 Not employed Not_employed PATO:0001995 socio-demographic and economic characteristics PATO:0001995 EmploymentSector EmploymentSector PATO:0001995 socio-demographic and economic characteristics PATO:0001995 EmploymentType EmploymentType PATO:0001995 socio-demographic and economic characteristics PATO:0001995 Employer Employer PATO:0001995 socio-demographic and economic characteristics Self-reported financial status PATO:0001995 FinancialStatus FinancialStatus PATO:0001995 socio-demographic and economic characteristics PATO:0001995 MaritalStatus MaritalStatus PATO:0001995 socio-demographic and economic characteristics PATO:0001995 PartnershipStatus PartnershipStatus PATO:0001995 socio-demographic and economic characteristics Self-reported health status MONDO:0000001 HealthStatus HealthStatus MONDO:0000001 diseases MONDO:0000001 Tuberculosis Tuberculosis MONDO:0000001 diseases MONDO:0000001 HIV HIV MONDO:0000001 diseases MONDO:0000001 If HIV+ If_HIVPos MONDO:0000001 diseases i. When last HIV- result (>1yr, <1yr ago) MONDO:0000001 If HIV- If_HIVNeg MONDO:0000001 diseases HIV serostatus from dried blood spot GECKO:0000027 HIVResult HIVResult GECKO:0000027 laboratory measures MONDO:0000001 Hypertension Hypertension MONDO:0000001 diseases MONDO:0005151 Diabetes Diabetes MONDO:0005151 endocrine system diseases GECKO:0000056 Health care utilisation Health_care_utilisation GECKO:0000056 questionnaire/survey data For each vaccination record: date received and source of information (Road to Health Card or recall) GECKO:0000091 Vaccination history (child <=6yr) Vaccination_history GECKO:0000091 non-pharmacological interventions Set of data elements collected from a household informant, during a face to face or telephonic interview PATO:0001995 Household Status Observation Household_Status_Observation PATO:0001995 socio-demographic and economic characteristics The most commonly used (during last year) source of drinking water PATO:0001995 Water source Water_source PATO:0001995 socio-demographic and economic characteristics What kind of toilet does the household use PATO:0001995 Toilet Toilet PATO:0001995 socio-demographic and economic characteristics Is the household connected to the electricity grid? PATO:0001995 Electricity supply Electricity_supply PATO:0001995 socio-demographic and economic characteristics What is the main fuel used for cooking? PATO:0001995 Cooking fuel Cooking_fuel PATO:0001995 socio-demographic and economic characteristics What is the construction materials of the walls? What is the construction material of the floor? How many bedrooms does your household occupy at this dwelling? PATO:0001995 Dwelling construction Dwelling_construction PATO:0001995 socio-demographic and economic characteristics Does the household have any of the following items in good working order? PATO:0001995 Assets Assets PATO:0001995 socio-demographic and economic characteristics Has any resident member of the household been a victim of any of these crimes in the past 12 months? PATO:0001995 Crime Crime PATO:0001995 socio-demographic and economic characteristics How would the household classify its financial situation these days? PATO:0001995 Financial situation Financial_situation PATO:0001995 socio-demographic and economic characteristics In the last 12 months did you or any other member of your household ever cut the size of your meals or skip meals because there was not enough money for food? PATO:0001995 Food security Food_security PATO:0001995 socio-demographic and economic characteristics